Recent news that 68-year-old singer and guitarist Peter Frampton was diagnosed with inclusion body myositis, or IBM, startled the world, but this rare inflammatory disease of the muscles is very familiar to me. I have dermatomyositis, which is another form of idiopathic inflammatory myopathy.
Frampton’s news is a humble reminder that this progressively debilitating condition can strike anyone, even a famous rock star.
As someone who lives with the challenges of muscle weakness, fatigue and pain, I found it reassuring to hear Frampton’s message of hope when he said, “IBM is not life-threatening; it is life-changing.”
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Although we still don’t know enough about what causes myositis, I am grateful for the increased attention Frampton’s announcement brings to myositis diseases, which are rare, difficult to diagnose and even more challenging to treat.
Like Frampton, I too thought my symptoms were just part of the aging process. This is a reminder to all of us that we shouldn’t dismiss our signs and symptoms. We should be honest with our doctors and let them know what we are experiencing.
Falling is not a sign of getting old. For more information, visit www.myositis.org.
No more, no more
After watching Michael Cohen’s testimony before Congress on Wednesday, I can only hope that the next president we elect won’t have a “fixer” or a “dirty trickster.”