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Hospice care
Kansas City Hospice & Palliative Care operates a prenatal hospice care program. A team of specialists, including social workers, nurses and chaplains, will visit a family’s home. The non-profit organization works with a patient’s insurance, but will not turn away anyone who does not have insurance. For more information, call (816) 363-2600.
Web sites
•Be Not Afraid, a Web site for parents who have received a poor or difficult prenatal diagnosis. The site contains family stories, articles and links presented as a resource for those who must choose between terminating or continuing a pregnancy after a terminal prenatal diagnosis. www.benotafraid.net
•Carrying to Term Pages, a Web site listing resources and ideas to help a family cope when it hears devastating news about an unborn baby. www.geocities.com/tabris02
Books
•Holding On to Hope: A Pathway Through Suffering to the Heart of God, by Nancy Guthrie. The author lost a daughter and a son to a metabolic disorder. She writes about how to trust God on the darkest days.
•Free to Grieve: Healing and Encouragement for Those Who Have Experienced the Physical, Mental and Emotional Trauma of Miscarriage and Stillbirth, by Maureen Rank. The author, who experienced four miscarriages, helps guide readers through sorrow to find healing.
•Waiting With Gabriel: A Story of Cherishing a Baby’s Brief Life, by Amy Kuebelbeck. The story of a family whose unborn baby was diagnosed with a severe heart problem but who continued the pregnancy with the help of the palliative care offered by an infant hospice center.