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Bobby Beeler of Leawood, who’s 25 and has autism, has found a job cleaning up at ScriptPro in Mission.
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Each year, tens of thousands of children diagnosed with autism, from mild to severe, enter adulthood and leave the safe confines of schools and their services behind.
Every day, their parents, such as Jennifer Smith-Currier of Gardner, worry what will become of them.
“It’s like, where is the journey going?” said Smith-Currier, whose children Corinne, 16, and Cameron, 14, have autism. “When you have a typical child, there are goals: You go to high school; you go to college; you have a career and 2.5 children. My daughter is 16 with the mental capacity of a 12-year-old. Will my son ever get married? I don’t know the answer. Will my daughter ever drive a car? I don’t know the answer. Will she ever find love?
“I won’t be around forever. I want to know they’re safe. I want to know there will be somebody to look after them, that they won’t be forgotten and can lead productive lives.”
On Friday, Smith-Currier, who works with the Kansas chapter of the Autism Speaks advocacy group, joined about 65 other parents, counselors, developmental experts and many adults with autism to be part of a “National Town Hall” — meetings held simultaneously in 16 cities.
One goal was to allow participants to vote nationally on strategies to address what another parent, Kirsten Sneid of Leawood, called “the silent tsunami” of autistic youth entering adulthood.
The work meeting, “Advancing Futures for Adults with Autism,” sponsored locally by Children’s Mercy Hospital and The Kansas Center for Autism Research and Training at the University of Kansas, was held all day at the Ewing Marion Kauffman Foundation Conference Center.
“The fact is this is a growing problem that we’re going to need to address as a community,” said Sean Swindler, director of community program development for the KU group.
At its core, autism is a disorder of brain development. It affects people’s ability to communicate or emotionally connect to others.
Estimated some 30 years go to affect about 1 in 10,000 people, the Centers for Disease Control and Prevention now estimates that the disorder may affect as many as 1 in 100 to 1 in 150 people, or about 2 to 3 million people nationwide.
The disorder’s cause and the reasons for its precipitous rise are not known. The scope of its effects is vast.
In some instances, people with autism are uncommunicative, lost in their own worlds and unable to care for their most basic needs. Others, such as individuals with Asperger’s syndrome, are highly intelligent, talented or even savant.
One of the participants on Friday, Linda Jameson, was diagnosed with Asperger’s in the 1990s after struggling her first 33 years with traits that only mystified and depressed her. Now teaching part-time at Johnson County Community College, she is pursuing a special-education degree with an autism emphasis.
“I stayed awake all last night worrying if I could get my ideas across to the others today,” she said. But everyone was receptive at her table.
“What is known,” said Swindler, “is that when you get to numbers like 1 in 150 or 1 in 100, you can be assured that every single person in the community has autism touching either them or their family or friends.”
Ideally, life for adults with autism might be something like it is for Bobby Beeler, 25, of Leawood. Although many individuals with autism are able to hold jobs, their unemployment rate is probably 80 percent.
The Star’s Rick Montgomery contributed to this report. To reach Eric Adler, call 816-234-4431 or send e-mail to eadler@kcstar.com.
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